State of Sickle Cell Care in Massachusetts

Holyoke, MA US
July 13, 2024

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Click on the "Program" tab to view the outline of the day 

Date & Location:  
Saturday, July 13, 2024
9:30 am - Registration
10:00 - 2:00 pm  - Program
The Baystate Education Center, 361 Whitney Ave,  Holyoke, MA.

Hybrid course:  In-Person and Zoom


The goal of this educational activity is to discuss barriers to care for patients with sickle cell disease (SCD).  The conference will also provide an update on the latest evidence in sickle cell management, including new FDA-approved pharmacological therapies, approaches to curative intent therapy, and pain management. The conference will provide a forum of investigators, healthcare providers, patients and families, and other stakeholders to discuss research in sickle cell disease, as well as hear presentations about ongoing research and new developments in the scientific and clinical aspects of the disease. Attendees will also have the opportunity to interact with medical experts, patients, and families, participate in engaging discussions, and network with fellow attendees who share a passion for sickle cell research and advocacy.        

Jointly Provided by: 

Baystate Office of Patient Experience, Massachusetts Sickle Cell Association & Baystate Continuing Interprofessional Education.


Target Audience

This course was designed for patients, families, community organizations that service patients with sickle cell disease, physicians, nurses, social workers, therapists, counselors, clergy, and the general public interested in learning about sickle cell disease.

Learning Objectives


After participating in this educational activity, attendees should be able to:  

1. Summarize research, and practical solutions for improving health equity for patients living with Sickle Cell Disease.

2.  Evaluate advances in sickle cell disease research, treatment, and care for patients living with Sickle Cell Disease.

3.  Analyze new techniques and approaches to pain management for patients living with Sickle Cell Disease and review the barriers to care.

4.  Discuss opportunities to bring caregivers, advocates, and all those in the healthcare industry together to raise awareness of the disease, dispelling stigmas and highlighting the need for continued research for advanced treatments and better care for the SCD community.


Course summary
Available credit: 
  • 2.75 AMA PRA Category 1 Credit™
  • 2.75 BCIPE Instructional Hours
Course opens: 
Course expires: 
Event starts: 
07/13/2024 - 9:30am EDT
Event ends: 
07/13/2024 - 2:00pm EDT

9:30 am               Registration

10:00 am             Welcome Remarks - Tammy Sharif, CPXP

10:03 am             Legislative Advocacy - State Representative Bud Williams     CREDIT PENDING

10:10 am             Navigating the (Baystate) Healthcare System - Kirti K. Joshi, MD

10:30 am             Current Sickle Cell Disease Treatments and Gene Therapy - Richard Steingart, MD & Joanna Luty, MD

11:00 am             Sickle Cell Care in the ER - Philippa G. Spinz, MD

11:20 am             Social Determinant of Health - Nura El-Haj, MD

11:40 am             American Red Cross:  Sickle Cell Disease Initiative - Nia Rennix   CREDIT PENDING

11:45 am             Questions & Answers

12:00 pm             Lunch

12:30 pm             Sickle Cell Disease and Racism - Sharl Azar, MD

12:45 pm             Questions & Answers

1:00 pm               Living with Sickle Cell Disease - Elsa Franco (Parent & Advocate & Patient Panel)

1:55 pm               Closing Remarks

2:00 pm               Adjourn


The Baystate Education Center
361 Whitney Ave
Holyoke, MA 01040
United States

Maps & Directions

The Baystate Health Education Center is the primary location for many of Baystate's continuing education, orientation and other Baystate sponsored programs.


Tammy Sharif, CPXP
Patient Experience Specialist
Baystate Medical Center


Sharl Azar, MD
Medical Director, MGH Comprehensive Sickle Cell Disease Center
Robert K. Kraft Chair in Diversity, Equity, and Inclusion
Massachusetts General Hospital
Harvard Medical School, Boston, MA

Dr. Azar is a consultant and receives grant support for Vertex Pharmaceuticals and receives grant support from Pfizer.

Nura El-Haj, MD, PACP, FAAP
Assistant Professor Pediatric Hematology/Oncology
UMASS Chan Medical School - Baystate
Attending Physician Pediatric Hematology/Oncology
UMASS Memorial Medical Center

Elsa Franco
Parent and Advocate

Kirti K. Joshi, MBBS, MD
Assistant Professor of Medicine
Medical Director of Patient Safety and Hospitalist Clinical
UMass Chan Medical School-Baystate
Baystate Health

Philippa Spinz, MD, MSC
Brown University
Warren Alpert School of Medicine

Richard Steingart, MD
Assistant Professor of Medicine
UMass Chan Medical School - Baystate
Hematology & Oncology
Medical Director Adult Hematology
D'Amour Center for Caner Care
Baystate Medical Center


Faculty Disclosure

The design and content of Baystate Continuing Interprofessional Education (CE) activities support quality improvement in healthcare and provide fair and balanced views of therapeutic options. Any relevant financial relationships are mitigated prior to the educational activity.

Dr. Azar is a consultant and receives grant support for Vertex Pharmaceuticals and receives grant support from Pfizer.

None of the other planners or faculty for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

In support of improving patient care, Baystate Health is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.


Baystate Continuing Interprofessional Education designates this live activity for a maximum of 2.75 AMA PRA Category 1 Credit(s)TM.  Physicians should only claim the credit commensurate with the extent of their participation in the activity.



Available Credit

  • 2.75 AMA PRA Category 1 Credit™
  • 2.75 BCIPE Instructional Hours


Please login or register to take this course.


Please Note: In order for your registration to be considered complete:
  • Each participant must register themselves for the program.
  • Registration is complimentary


In order to receive CREDIT, the evaluation must be completed by:Tue, 12/31/2024 - 3:30pm

We appreciate your business and sincerely wish to meet your educational needs.  We understand that the schedule of a busy professional, like yourself, is subject to change.  Therefore, we have included information about our refund/cancellation policies for your convenience below.

If you must cancel, telephone Baystate Continuing Interprofessional Education at 413-322-4242 and follow your call with a written/email request. 

Specific Aids or Services:
Please call Baystate Continuing Interprofessional Education at 413-322-4242 if, under the Americans with Disabilities Act, you require specific aids or services during your visit to this continuing education program.